And gently lead those that are with young. Isaiah 40:11

Friday, November 20, 2009

The Story of Dax and God's Helpers

Have you heard the story of 2 year old Dax from Illinois? It is a sad story, and I must tell you that I wept when I read it and saw the video on CNN. But as I dried my eyes I knew this blessed child accomplished so much in his short time on earth, and I very much wanted to help spread his story.

Dax's doctors say he may not make it to Christmas. He is battling a rare form of cancer, and treatments have now stopped. He knows he will be going to be with the angels. His family, neighborhood, and now countless others, are banding together to bring Christmas early to Dax.

The news reports tell us about the loss of a child, his parents, his family, their strength, God's grace, mercy, human endurance, love... And they tell us, too, about the helpers.

Dax's story is full; it tells us to love, and reminds us to focus on what is important in life. Let his story remind us too, that when we see someone in need, witness a tragedy, or know someone who is at the end of their ability to cope, God is probably calling us to be one of His helpers.

I encourage you to go to CNN's Website and watch the video of Dax. It is beautiful. I ask that we remember all children who are ill, and lift them and their parents up in prayer this day. Amen.


On a crisp Halloween night,icicle lights and Santa Clauses mingled with ghosts and jack-o'-lanterns in a Washington, Illinois, neighborhood.

The community is helping a family squeeze in a little extra holiday cheer with their young son.

Doctors say 2-year-old Dax Locke is losing his fight with acute myeloid leukemia and may only have weeks to live, so parents Julie and Austin Locke put Christmas lights up outside their home for the little boy, who loves glowing things. Dax opens presents each day under a tree that's already been up for several weeks.

"We don't have much time left with Dax, don't know if he will make it to Christmas, so we wanted to have Christmas early," Julie Locke told local news station WMBD.

Neighbor and friend Trish Hurtgen says she and her husband were inspired by the family's efforts, so they put up their own lights and encouraged neighbors to do the same. Soon, the entire block was lit up with Christmas lights. They also planned a special surprise for the family.

While the Lockes traveled to Chicago's Shedd Aquarium for a special trip with Dax, the neighborhood banded together to decorate a huge tree in the family's yard so the Lockes could be delighted when they returned just after Halloween.

From there, she and other neighbors have helped encourage people to show silent support for the family by putting up Christmas lights at home and around the community. The effort, called Decorate for Dax, has its own Web site with space for people everywhere to send pictures and see others' displays.

Hurtgen calls the Lockes a "family of courage" that she found inspirational, and she wanted to help if she could.

"This is a family who stayed united and formed a team to help Dax," Hurtgen said. "They gave everything they had. We're trying to do the same thing."

Dax has spent past holidays at St. Jude Children's Research Hospital in Memphis, Tennessee, but this year, he's at home. Save for receiving palliative radiation to improve his quality of life, he is off cancer treatments.

Hurtgen says Dax enjoys going for car rides and seeing the lights on around him. The family plans to make a book out of photos that people send so Dax will be able to see all the lights for Christmas if he's too sick to go outside.

iReporter Cindy Miller lives in the area and got involved in local neighborhood decorating projects. She posted a video on CNN iReport to raise awareness of the Decorate for Dax project. She narrated a drive through Dax's neighborhood shortly after Halloween, and many houses were illuminated.

During one project, locals put up lights and luminarias at a local park. Miller sent photos and video of the illuminated areas she spotted, including a red, white and green sign with Dax's name in bright lights.

Miller said her heart was warmed by all the work the community put into the decorations, and she was overjoyed to see Dax out with the family amid all the people helping to decorate.

I sobbed like a baby, but was overjoyed at the show of support for this family
--Cindy Miller, iReporter. "I sobbed like a baby, but was overjoyed at the show of support for this family who may not have their baby here at Christmastime. It's unusual to see Christmas lights up so early, but this year, there's a good reason."

Hurtgen says she's been surprised by how Decorate for Dax has taken off. Submissions have come from all over the United States and in far-flung countries like Australia and Germany.

"I don't know how the word is getting out," Hurtgen said.

Hurtgen added that one woman even wrote in to say that her husband, stationed in Afghanistan, was working with fellow troops to photograph a lights display for Dax.

Some of the colorful and bright displays she's seen include big signs with Dax's name on them and holiday-themed shapes and figurines. Other displays are more humble, like a message from another boy in a hospital and a makeshift tribute inside a tiny apartment.

"It doesn't have to be big, just your way of showing support."

The Lockes aren't the only family hosting an early Christmas. Diana Biorkman of South Lyon, Michigan, told CNN affiliate WDIV that her son, Noah, is dying of a Stage 4 neuroblastoma, which is a type of cancer that forms in nerve tissue.

Noah loves opening mail, so the family asked people to send him a Christmas card. Word got out, and he started getting gifts and cards from strangers. The family recently picked up a carload of mail and toys. Detroit Tigers baseball player Brandon Inge even sent a card and stopped over for a "play date" that included building a snow fort with Noah.

Hurtgen says the silent show of support works well for their community because Dax needs his rest and the family needs their privacy.

Perhaps, she said, people will see this odd display of early lights and wonder what is going on. Maybe they'll also pause for a moment to think about Dax and about what they can do to help. The family is asking people to make donations to St. Jude.

"That's what Christmas is about, giving and not needing to get in return."

Everyone is holding out hopes Dax will make it to Christmas.

"Christmas would be a miracle. We're praying for a big miracle."


Lance Boldt said...

Our Josh had acute myeloid leukemia as well. When he relapsed we knew it would be a short time. I turned out to be 15 days.

Here's what our 15 year old son with Down syndrome had on this "bucket list" for those last few days.

Special Needs Mom said...

Thank you so much for sharing your story and Josh with us. Bless his beautiful soul. And bless yours, too. I post this with a prayer from my heart for you -- I shall begin it as soon as I press the "send" key in a few seconds. May God be with you, and may you feel His peace this night, dear friend.

I could not open the site you included. Is there another way to access it? Love, Theresa